The family of a Limavady boy with the life-limiting muscle-wasting condition have told how they have joined forces with families across the UK to help Muscular Dystrophy UK boost research.
The charity, speaking on World Duchenne Awareness Day (September 7) has announced £760,000 of funding to cover five new research projects tackling Duchenne muscular dystrophy, which affects 6-year-old Callum McCorriston.
Callum’s parents, Laura Smith and Paul McCorriston have raised more than £7,000 through their fund, Team Callum, and are among families living with Duchenne muscular dystrophy who are contributing to the charity’s Duchenne Research Breakthrough Fund.
Around 2,500 children and young people in the UK live with the condition. It causes muscles to weaken and waste, leading to increasingly severe disability. Duchenne muscular dystrophy not only affects muscles needed to move, but also the heart and vital breathing muscles, cutting lives short.
The new grants will fund cutting edge research, including work to further develop pioneering potential genetic treatments.
“Our mission as parents is ultimately to raise money so the researchers and scientists can work to find a cure for Duchenne,” said Laura.
Laura said the family are overwhelmed ‘Team Callum’ at the support from the community so far.
“To us, it means the world that people have come to us and said, ‘Look, we are doing a fundraiser, can we give you the money?’ That, to us, again shows us the kindness of our local community,” Laura said.
Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund is on track to raise £2.7million by 2017.
Robert Meadowcroft, Chief Executive of Muscular Dystrophy UK, said: “We would like to thank people in Limavady for supporting Team Callum, and taking us one step closer to this goal.”