The mum of a Limavady boy who suffers from a rare muscle disease has spoken of her overwhelming thanks to her son’s school for their fundraising efforts to help find a cure for the condition.
Laura Smith’s five-year-old son, Callum McCorriston has Duchenne Muscular Dystrophy.
Laura has set up ‘Team Callum’ to raise funds for research into treatments and all money raised goes towards the Duchenne Research Fund. Donating towards that fund is Callum’s school, Termoncanice P.S. They put on an extra night of their P7 show, ‘The Legend of Finn McCool’ at the Roe valley Arts & Cultural centre on Thursday and all proceeds - £1,400 - from tickets, raffle sale and refreshments have been donated to ‘Team Callum’.
“It was amazing,” said Laura, “and Termoncanice have been so good to Callum. I don’t think they realise just how much we appreciate everything they do.”
Termoncanice vice principal, Mary Harron said the P7 pupils were happy to share their talents with the wider community to raise money and awareness about the condition.
Thanking the community for their support, she added: “Callum comes through the door every day with a smile and you would never know he is in any pain. He brightens everyone’s day,” said Ms Harron.
Callum could benefit from a treatment called Translarna, but Laura said such is the nature of the condition, time can’t be wasted. Laura, and Callum’s dad, Paul McCorriston, are pinning their hopes on their application to avail of individual treatment for Translarna.
“It really is a waiting game,” said Laura. “If Callum gets the treatment it will be life changing but, wasted time is wasted muscles.”