Louise Hughes and her seven-years-old daughter Dani Rose know exactly what it’s like to live with Type One Diabetes.
On April 25, they’ll travel as part of a Juvenile Diabetes Research Foundation (JDRF) group to the House of Commons in London, where they and others will brief MPs on the issues facing those living with the illness.
When she was pregnant with Dani-Rose, Louise was diagnosed with gestational Diabetes.
Longtower Primary School pupil Dani Rose was then diagnosed with Type 1 diabetes when she was three. In the years which followed, Louise was under intense pressure and had to monitor her daughter’s health very closely to try and prevent ‘hypos’ caused by low blood glucose levels.
In 2014, Dani Rose was given a special insulin pump by the Western Trust which changed her life, and the lives of her parents. Since then, life has been easier for Louise and Dani-Rose but she feels that a shorter waiting time for insulin pumps would benefit everyone.
“Easier access to a pump when a child is diagnosed would be a big help,” says Louise. “That’s something I hope we’ll get to talk about in Westminster. I think it will also be a great chance to meet with other parents who share our experiences.”
JDRF is holding the House of Commons reception to launch a new JDRF report on the current state of type 1 diabetes research in the UK, and to celebrate recent research progress towards the cure.