An Inishowen mother, one of a group of seven from Donegal who recently met with the Minister for Health, said they have “great hope” in their campaign to address the lack of children’s palliative care provision in the country.
Sharon Thompson from Moville was part of the group ‘Our Children’s Voice,’ and joined the other mothers in Dublin recently to meet with Minister Leo Varadkar.
The mothers were only due to attend the meeting with the Minister, which was arranged by Donegal North East TD, Minister Joe McHugh.
However, while there, they ‘bumped’ into An Taoiseach Enda Kenny.
Speaking to the ‘Journal,’ the mothers described presenting their children’s stories to the Minister, Taoiseach and other TDS as “very emotional.”
They added that the long journey to and from Dublin was “especially poignant” as travelling with their life-limited children to appointments in Dublin was one of their main concerns,
Donegal has no outreach nurse, a lack of paediatric palliative care specialists, no cross border links or respite/hospice beds for children and the group aim to change this.
“Cross-border links and outreach clinics from Dublin, Derry and Belfast were considered reasonable requests by all the politicians,” says Gina Grant. “The Donegal Hospice are willing to provide capital funding but we need the HSE to supply paediatric, palliative care staff, as is stated in their own policies and guidelines.” The group are to have follow-up communication and meetings in the coming weeks.
Sharon Thompson adds, “We have great hope. The entire national media have taken on our
“We have great support from the likes of Ryan Tudridy, Danny O’Carroll and Michael Murphy. Now holding many letters, our stories and proposals, a great deal rests in the hands of the Minister.”