The celebration event, organised by Sandra Campbell and the North West Rare Disease Support Group, was a hopeful and positive gathering.
Here are some pictures.
. Rosaline Callaghan (newly appointed Partnership Development Officer), Caroline McFerran (Community Navigator) and Edel Rogan (Community Activator) with NIRDP.
Rosaline Callaghan (newly appointed Partnership Development Officer), Caroline McFerran (Community Navigator) and Edel Rogan (Community Activator) with NIRDP. Photo: Lorcan Doherty
. Sarah Callaghan & Patrick Toland with members of APG for Rare Disease, Mark H Durkan MLA (Chair), Maolíosa McHugh MLA (Vice Chair) and Ciara Ferguson MLA.
Sarah Callaghan & Patrick Toland with members of APG for Rare Disease, Mark H Durkan MLA (Chair), Maolíosa McHugh MLA (Vice Chair) and Ciara Ferguson MLA. Photo: Lorcan Doherty
. Caroline McFerran, Patrick Toland, Edel Rogan and Anne-Marie O’Loan (NIRDP Board)
Caroline McFerran, Patrick Toland, Edel Rogan and Anne-Marie O’Loan (NIRDP Board) Photo: Lorcan Doherty
. Jan Wright (Fragile X Society ), Sarah, Anne- Marie & Conan Donnelly (CEO Niemann-Pick Disease Registry)
Jan Wright (Fragile X Society ), Sarah, Anne- Marie & Conan Donnelly (CEO Niemann-Pick Disease Registry) Photo: Lorcan Doherty
. Back L-R : Frances Murphy (Co founder), Tanya Boggs (former Project Officer), Rosemary, Christine Collins MBE (Co founder NIRDP), Rosaline, Anne-Marie, Jan and Conan. Front, Sandra Campbell, (Board Advisor & Coordinator Foyle & NW), Sarah Callaghan and Rhoda Walker.
Back L-R : Frances Murphy (Co founder), Tanya Boggs (former Project Officer), Rosemary, Christine Collins MBE (Co founder NIRDP), Rosaline, Anne-Marie, Jan and Conan. Front, Sandra Campbell, (Board Advisor & Coordinator Foyle & NW), Sarah Callaghan and Rhoda Walker. Photo: Lorcan Doherty
1. Sarah Callaghan & Patrick Toland with members of APG for Rare Disease, Mark H Durkan MLA (Chair), Maolíosa McHugh MLA (Vice Chair) and Ciara Ferguson MLA.
Sarah Callaghan & Patrick Toland with members of APG for Rare Disease, Mark H Durkan MLA (Chair), Maolíosa McHugh MLA (Vice Chair) and Ciara Ferguson MLA. Photo: Lorcan Doherty
2. Caroline McFerran, Patrick Toland, Edel Rogan and Anne-Marie O’Loan (NIRDP Board)
Caroline McFerran, Patrick Toland, Edel Rogan and Anne-Marie O’Loan (NIRDP Board) Photo: Lorcan Doherty
3. Jan Wright (Fragile X Society ), Sarah, Anne- Marie & Conan Donnelly (CEO Niemann-Pick Disease Registry)
Jan Wright (Fragile X Society ), Sarah, Anne- Marie & Conan Donnelly (CEO Niemann-Pick Disease Registry) Photo: Lorcan Doherty
4. Back L-R : Frances Murphy (Co founder), Tanya Boggs (former Project Officer), Rosemary, Christine Collins MBE (Co founder NIRDP), Rosaline, Anne-Marie, Jan and Conan. Front, Sandra Campbell, (Board Advisor & Coordinator Foyle & NW), Sarah Callaghan and Rhoda Walker.
Back L-R : Frances Murphy (Co founder), Tanya Boggs (former Project Officer), Rosemary, Christine Collins MBE (Co founder NIRDP), Rosaline, Anne-Marie, Jan and Conan. Front, Sandra Campbell, (Board Advisor & Coordinator Foyle & NW), Sarah Callaghan and Rhoda Walker. Photo: Lorcan Doherty