The celebration event, organised by Sandra Campbell and the North West Rare Disease Support Group, was a hopeful and positive gathering.
1. Sarah Callaghan & Patrick Toland with members of APG for Rare Disease, Mark H Durkan MLA (Chair), Maolíosa McHugh MLA (Vice Chair) and Ciara Ferguson MLA.
Sarah Callaghan & Patrick Toland with members of APG for Rare Disease, Mark H Durkan MLA (Chair), Maolíosa McHugh MLA (Vice Chair) and Ciara Ferguson MLA. Photo: Lorcan Doherty
2. Caroline McFerran, Patrick Toland, Edel Rogan and Anne-Marie O’Loan (NIRDP Board)
Caroline McFerran, Patrick Toland, Edel Rogan and Anne-Marie O’Loan (NIRDP Board) Photo: Lorcan Doherty
3. Jan Wright (Fragile X Society ), Sarah, Anne- Marie & Conan Donnelly (CEO Niemann-Pick Disease Registry)
Jan Wright (Fragile X Society ), Sarah, Anne- Marie & Conan Donnelly (CEO Niemann-Pick Disease Registry) Photo: Lorcan Doherty
4. Back L-R : Frances Murphy (Co founder), Tanya Boggs (former Project Officer), Rosemary, Christine Collins MBE (Co founder NIRDP), Rosaline, Anne-Marie, Jan and Conan. Front, Sandra Campbell, (Board Advisor & Coordinator Foyle & NW), Sarah Callaghan and Rhoda Walker.
Back L-R : Frances Murphy (Co founder), Tanya Boggs (former Project Officer), Rosemary, Christine Collins MBE (Co founder NIRDP), Rosaline, Anne-Marie, Jan and Conan. Front, Sandra Campbell, (Board Advisor & Coordinator Foyle & NW), Sarah Callaghan and Rhoda Walker. Photo: Lorcan Doherty